TY - JOUR
T1 - Multiple Sclerosis at Home Access (MAHA)
T2 - An Initiative to Improve Care in the Community
AU - Healey, Kathleen
AU - Zabad, Rana
AU - Young, Lufei
AU - Lindner, Aubrie
AU - Lenz, Nancy
AU - Stewart, Renee
AU - Charlton, Mary
N1 - Funding Information:
We primarily acknowledge those whom we served-individuals with MS and severe disability-who were unique, talented, tenacious, and often fiercely independent. The challenges for these individuals and their families were initially underestimated by our team; the lessons learned from them will undoubtedly help improve care for others with MS. We also thank the MS Foundation for their generous funding and salary support. We thank Melody A. Montgomery for her professional editing. We also note that practice guidelines identified to direct care included guidance from Paralyzed Veterans of America, the Kessler Foundation, and the National Multiple Sclerosis Society. Dr. Healey has received grants from the Multiple Sclerosis Foundation. Dr. Zabad has been a site investigator or principal investigator for clinical trials funded by Biogen, Genentech, Novartis, and Sun Pharma; in the past 2 years, has served as a consultant for Bayer, Genzyme, Teva Neuroscience, and TG Therapeutics and has given unbranded lectures sponsored by Teva; and is also a member of the adjudication committee for a clinical trial of biotin in primary and secondary progressive MS sponsored by PAREXEL and MedDay Pharmaceuticals. The other authors declare no conflicts of interest. The Multiple Sclerosis Foundation funded partial salary support for a medical assistant for the MAHA program
Funding Information:
Multiple Sclerosis Foundation. Dr. Zabad has been a site investigator or principal investigator for clinical trials funded by Biogen, Genen-tech, Novartis, and Sun Pharma; in the past 2 years, has served as a consultant for Bayer, Genzyme, Teva Neuroscience, and TG Therapeutics and has given unbranded lectures sponsored by Teva; and is also a member of the adjudication committee for a clinical trial of biotin in primary and secondary progressive MS sponsored by PAREXEL and MedDay Pharmaceuticals. The other authors declare no conflicts of interest.
Funding Information:
Financial Disclosures: Dr. Healey has received grants from the
Funding Information:
Funding/Support: The Multiple Sclerosis Foundation funded partial salary support for a medical assistant for the MAHA program.
Publisher Copyright:
© 2019 Consortium of Multiple Sclerosis Centers.
PY - 2019/5/1
Y1 - 2019/5/1
N2 - Background: Caring for individuals with progressive, disabling forms of multiple sclerosis (MS) presents ongoing, complex challenges in health care delivery, especially access to care. Although mobility limitations represent a major hurdle to accessing comprehensive and coordinated care, fragmentation in current models of health care delivery magnify the problem. Importantly, individuals with disabling forms of MS are exceedingly likely to develop preventable secondary complications and to incur significant suffering and increased health care utilization and costs.Methods: A house call program, Multiple Sclerosis at Home Access (MAHA), was implemented. The program was designed to provide comprehensive services and prevent common complications. Key aspects included monthly house calls, continuity among providers, and a multidisciplinary team led by a comprehensivist, a provider bridging subspecialty and primary care. A total of 21 adult patients (Expanded Disability Status Scale score ≥7.5) completed 1 full year of the program.Results: During the 2-year preevaluation and postevaluation period, half of the hospital admissions were related to secondary and generally preventable complications. Aside from a single outlying individual important to the evaluation, in the year after program implementation, decreases were found in number of individuals hospitalized, hospitalizations/skilled facility admissions, and hospital days; the total number of overall emergency department (ED) visits decreased; and ED-only visits increased (ie, ED visits without hospital admission). Patient satisfaction reports and quality indicators were positive. Fifty percent of patients participated in supplementary televisits.Conclusions: This program evaluation suggests that a house call-based practice is a viable solution for improving care delivery for patients with advanced MS and disability.
AB - Background: Caring for individuals with progressive, disabling forms of multiple sclerosis (MS) presents ongoing, complex challenges in health care delivery, especially access to care. Although mobility limitations represent a major hurdle to accessing comprehensive and coordinated care, fragmentation in current models of health care delivery magnify the problem. Importantly, individuals with disabling forms of MS are exceedingly likely to develop preventable secondary complications and to incur significant suffering and increased health care utilization and costs.Methods: A house call program, Multiple Sclerosis at Home Access (MAHA), was implemented. The program was designed to provide comprehensive services and prevent common complications. Key aspects included monthly house calls, continuity among providers, and a multidisciplinary team led by a comprehensivist, a provider bridging subspecialty and primary care. A total of 21 adult patients (Expanded Disability Status Scale score ≥7.5) completed 1 full year of the program.Results: During the 2-year preevaluation and postevaluation period, half of the hospital admissions were related to secondary and generally preventable complications. Aside from a single outlying individual important to the evaluation, in the year after program implementation, decreases were found in number of individuals hospitalized, hospitalizations/skilled facility admissions, and hospital days; the total number of overall emergency department (ED) visits decreased; and ED-only visits increased (ie, ED visits without hospital admission). Patient satisfaction reports and quality indicators were positive. Fifty percent of patients participated in supplementary televisits.Conclusions: This program evaluation suggests that a house call-based practice is a viable solution for improving care delivery for patients with advanced MS and disability.
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U2 - 10.7224/1537-2073.2018-006
DO - 10.7224/1537-2073.2018-006
M3 - Article
C2 - 31191175
AN - SCOPUS:85067335782
SN - 1537-2073
VL - 21
SP - 101
EP - 112
JO - International Journal of MS Care
JF - International Journal of MS Care
IS - 3
ER -