Abstract
OBJECTIVES: Resistiveness to care (RTC) refers to behavior problems that co-occur during assistance with activities of daily living (ADL). RTC are considered challenging, but are mostly studied in institutions with implications for patients and formal caregivers. RTC is associated with agitation, but agitation is considered a separate construct. Detection of RTC may be left out of common assessments of persons with dementia in studies of informal caregiving (e.g. global assessments of dementia behavioral symptoms, standard assessments of ADL function). This study examines how RTC (frequency and caregivers' stress appraisals of RTC) is related to caregivers' well-being. METHOD: 234 caregivers of people with dementia reported care receivers' ADL impairment (eating, bathing, dressing), RTC frequency (of eating, bathing dressing), and their stress appraisals of these behaviors (RTC appraisals). Caregivers also self-reported their role overload, role captivity, and depressive symptoms. Hierarchical linear regression models included independent variables (demographics, ADL impairment, RTC frequency, RTC appraisals) with three separate dependent variables (overload, captivity, depressive symptoms). RESULTS: Two-thirds of informal caregivers reported RTC. Care recipients' ADL impairment was associated with caregiver outcomes, but only before RTC was entered into the models. RTC frequency significantly predicted caregivers' overload, captivity, and depression. RTC appraisals predicted overload and captivity. CONCLUSION: RTC is common in persons with dementia residing at home, and RTC has more negative association with informal caregivers' well-being than assistance with ADL. Adding RTC frequency and appraisal items to standard ADL measures may better estimate caregivers' needs and risk, and identify modifiable environmental features by assessing behavioral symptoms in context.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 595-604 |
| Number of pages | 10 |
| Journal | Journals of Gerontology - Series A Biological Sciences and Medical Sciences |
| Volume | 17 |
| Issue number | 2 |
| DOIs | |
| State | Published - Jun 2015 |
Keywords
- 80 and over
- Activities of Daily Living
- Adaptation
- Adolescent
- Adult
- Adult Children
- African Americans
- African Continental Ancestry Group
- Age Distribution
- Age Factors
- Aged
- Aging
- Alzheimer Disease
- Ambulatory
- Analysis of Variance
- Anger
- Anxiety
- Anxiety Disorders
- Arousal
- Artificial
- Athletic Injuries
- Attitude to Death
- Attitude to Health
- Attitudes
- Australia
- Austria
- Basal Metabolism
- Behavior
- Behavioral Risk Factor Surveillance System
- Behavioral Symptoms
- Bereavement
- Biomedical Research
- Blood Glucose Self-Monitoring
- Blood Pressure
- Blood Pressure Monitoring
- Bone
- Canada
- Cardiovascular Physiological Phenomena
- Caregivers
- Case Management
- Case-Control Studies
- Cerebral Palsy
- Chi-Square Distribution
- Child
- Child Behavior Disorders
- Child Development Disorders
- China
- Chronic Disease
- Circadian Rhythm
- Cluster Analysis
- Cognition
- Cognitive Therapy
- Cohort Studies
- Communication
- Consumer Health Information
- Continental Population Groups
- Cooperative Behavior
- Coronary Disease
- Cost of Illness
- Couples Therapy
- Critical Illness
- Cross-Sectional Studies
- Cultural Characteristics
- Data Collection
- Dementia
- Demography
- Depression
- Depressive Disorder
- Diabetes Mellitus
- Diet
- Diffusion of Innovation
- Disabled Children
- Disabled Persons
- Disease Management
- Dyspnea
- Econometric
- Educational Status
- Electronic Mail
- Emotions
- Empathy
- Employment
- Energy Metabolism
- Ethnic Groups
- European Continental Ancestry Group
- Evidence-Based Medicine
- Exercise
- Exercise Test
- Factor Analysis
- Family
- Family Characteristics
- Family Conflict
- Family Health
- Feasibility Studies
- Female
- Follow-Up Studies
- Foster Home Care
- Fractures
- Frail Elderly
- Frontotemporal Dementia
- Gait
- Geriatric Assessment
- Geriatrics
- Germany
- Hand Strength
- Health Behavior
- Health Information Systems
- Health Knowledge
- Health Priorities
- Health Promotion
- Health Services Needs and Demand
- Health Services for the Aged
- Health Status
- Health Status Disparities
- Health Status Indicators
- Health Surveys
- Heart Failure
- Hispanic Americans
- Home Care Services
- Home Nursing
- Housekeeping
- Humans
- Hydrocortisone
- Incidence
- Income
- Information Seeking Behavior
- Institutionalization
- Intention to Treat Analysis
- Intergenerational Relations
- Internet
- Interpersonal Relations
- Interviews as Topic
- Israel
- Italy
- Life Change Events
- Life Style
- Linear Models
- Logistic Models
- London
- Longitudinal Studies
- Love
- Major
- Male
- Mass Screening
- Medical Informatics
- Medication Adherence
- Mental Competency
- Mental Disorders
- Mental Health
- Middle Aged
- Mindfulness
- Mobility Limitation
- Models
- Monitoring
- Mortality
- Mothers
- Motor Activity
- Narration
- National Health Programs
- Needs Assessment
- Neoplasms
- Netherlands
- Neuromuscular Diseases
- Neuropsychological Tests
- New York
- New Zealand
- Nonlinear Dynamics
- Nuclear Family
- Nurse's Role
- Nursing Assessment
- Nursing Methodology Research
- Nursing Research
- Obesity
- Oncology Nursing
- Ontario
- Osteoporosis
- Outcome Assessment (Health Care)
- Outcome and Process Assessment (Health Care)
- Palliative Care
- Parent-Child Relations
- Parenting
- Parents
- Patient Advocacy
- Patient Care
- Patient Care Management
- Patient-Centered Care
- Patients
- Pennsylvania
- Perception
- Personal Satisfaction
- Personality Inventory
- Pervasive
- Physiologic
- Physiological
- Politics
- Population Surveillance
- Power (Psychology)
- Practice
- Practice Guidelines as Topic
- Prevalence
- Professional-Patient Relations
- Program Development
- Proportional Hazards Models
- Prospective Studies
- Prostatic Neoplasms
- Psychiatric Status Rating Scales
- Psychological
- Psychometrics
- Psychotherapy
- Public Policy
- Qualitative Research
- Quality of Life
- Regression Analysis
- Relaxation Therapy
- Reproducibility of Results
- Republic of Korea
- Research
- Research Design
- Residence Characteristics
- Resilience
- Respiration
- Respite Care
- Retrospective Studies
- Risk
- Risk Assessment
- Risk Factors
- Role
- Saliva
- Self Administration
- Self Care
- Self Concept
- Self Efficacy
- Self Report
- Self-Assessment
- Severity of Illness Index
- Sex Factors
- Sickness Impact Profile
- Sleep
- Social Adjustment
- Social Isolation
- Social Justice
- Social Networking
- Social Participation
- Social Support
- Social Work
- Socioeconomic Factors
- South Australia
- Spain
- Spinal Cord Injuries
- Spouses
- Statistical
- Stress
- Stroke
- Surveys and Questionnaires
- Survivors
- Taiwan
- Telemedicine
- Telephone
- Tennessee
- Terminal Care
- Terminally Ill
- Texas
- Theoretical
- Time Factors
- Type 2
- United States
- United States Department of Veterans Affairs
- Utilization Review
- Veterans
- Weight Gain
- Wisconsin
- Women
- Women's Health
- Working
- Workload
- Young Adult
- adverse effects
- analysis
- blood
- chemistry
- classification
- complications
- diagnosis
- drug therapy
- economics
- education
- epidemiology
- ethnology
- etiology
- instrumentation
- metabolism
- methods
- mortality
- nursing
- organization & administration
- pathology
- physiology
- physiopathology
- prevention & control
- psychology
- rehabilitation
- standards
- statistics & numerical data
- therapy
- utilization
