The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.
|Original language||English (US)|
|Number of pages||7|
|Journal||American Journal of Hematology|
|State||Published - Jan 2009|
ASJC Scopus subject areas