Abstract
The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.
Original language | English (US) |
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Pages (from-to) | 39-45 |
Number of pages | 7 |
Journal | American Journal of Hematology |
Volume | 84 |
Issue number | 1 |
DOIs | |
State | Published - Jan 2009 |
ASJC Scopus subject areas
- Hematology