Sickle cell disease summit: From clinical and research disparity to action

Kathryn Hassell, Betty Sue Pace, Winfred Wang, Roshni Kulkarni, Naomi Luban, Cage S. Johnson, James Eckman, Peter Lane, William G. Woods

Research output: Contribution to journalArticlepeer-review

25 Scopus citations


The American Society of Pediatric Hematology/Oncology Sickle Cell Summit brought together a broad range of constituencies to Identify a unified approach to healthcare and research disparities for sickle cell disease. Recommendations Included the following; (1) speak with a unified voice representing all constituencies; (2) optimize access to care from knowledgeable health care providers and create a medical home for all individuals with the disease; (3) utilize population-based surveillance to measure outcomes; (4) develop overall approaches to basic, translational, clinical, and health services research; (5) enhance the community role in advocacy, education, service, and fundraising. Taskforces were identified to effect implementation.

Original languageEnglish (US)
Pages (from-to)39-45
Number of pages7
JournalAmerican Journal of Hematology
Issue number1
StatePublished - Jan 2009

ASJC Scopus subject areas

  • Hematology


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