TY - JOUR
T1 - Structural, Institutional, and Interpersonal Racism
T2 - Calling for Equity in Autism Research and Practice
AU - Singh, Jennifer S.
AU - Brasher, Susan
AU - Sarrett, Jennifer
AU - Barger, Brian
AU - Guerra, Karen
AU - Dilly, Laura J.
AU - Rubin, I. Leslie
AU - Stapel-Wax, Jennifer L.
AU - Benevides, Teal
AU - Fernandez-Carriba, Samuel
N1 - Publisher Copyright:
© W. Montague Cobb-NMA Health Institute 2025.
PY - 2025
Y1 - 2025
N2 - Disparities in autism research and practices based on race and ethnicity are evident across many outcomes and life course stages. However, most of the research has focused on outlining differences and not the underlying systemic inequities driving these disparities. In this conceptual paper, we aim to shift the focus by outlining mechanisms of structural racism within the institutions of science, healthcare, and residential segregation and educational systems in the United States (U.S.). We argue that these and other forms of institutional racism constitute structural racism that are influencing the racial and ethnic disparities we see in autism services and care. For each of these institutions, we identify institutional racism related to autism and offer an example of how it shapes interpersonal racism and adverse outcomes, including misdiagnosis, delayed diagnosis, unequal access to educational services, and differential treatment in clinical encounters. We then provide anti-racism approaches in autism research and practice for each of these institutions that addresses institutional and interpersonal racism shaping autism inequities among racial and ethnic minorities. We conclude with a call to action to clinicians, researchers, and others to prioritize and disrupt the impacts of structural, institutional, and interpersonal racism through targeted anti-racism approaches.
AB - Disparities in autism research and practices based on race and ethnicity are evident across many outcomes and life course stages. However, most of the research has focused on outlining differences and not the underlying systemic inequities driving these disparities. In this conceptual paper, we aim to shift the focus by outlining mechanisms of structural racism within the institutions of science, healthcare, and residential segregation and educational systems in the United States (U.S.). We argue that these and other forms of institutional racism constitute structural racism that are influencing the racial and ethnic disparities we see in autism services and care. For each of these institutions, we identify institutional racism related to autism and offer an example of how it shapes interpersonal racism and adverse outcomes, including misdiagnosis, delayed diagnosis, unequal access to educational services, and differential treatment in clinical encounters. We then provide anti-racism approaches in autism research and practice for each of these institutions that addresses institutional and interpersonal racism shaping autism inequities among racial and ethnic minorities. We conclude with a call to action to clinicians, researchers, and others to prioritize and disrupt the impacts of structural, institutional, and interpersonal racism through targeted anti-racism approaches.
KW - Anti-racism
KW - Autism inequities
KW - Institutional racism
KW - Interpersonal racism
KW - Structural racism
UR - http://www.scopus.com/inward/record.url?scp=85217156206&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85217156206&partnerID=8YFLogxK
U2 - 10.1007/s40615-024-02280-x
DO - 10.1007/s40615-024-02280-x
M3 - Article
AN - SCOPUS:85217156206
SN - 2197-3792
JO - Journal of Racial and Ethnic Health Disparities
JF - Journal of Racial and Ethnic Health Disparities
ER -