TY - JOUR
T1 - The society of thoracic surgeons congenital heart surgery database
T2 - 2016 update on outcomes and quality
AU - Jacobs, Jeffrey P.
AU - Mayer, John E.
AU - Mavroudis, Constantine
AU - O'Brien, Sean M.
AU - Austin, Erle H.
AU - Pasquali, Sara K.
AU - Hill, Kevin D.
AU - He, Xia
AU - Overman, David M.
AU - St. Louis, James D.
AU - Karamlou, Tara
AU - Pizarro, Christian
AU - Hirsch-Romano, Jennifer C.
AU - McDonald, Donna
AU - Han, Jane M.
AU - Dokholyan, Rachel S.
AU - Tchervenkov, Christo I.
AU - Lacour-Gayet, Francois
AU - Backer, Carl L.
AU - Fraser, Charles D.
AU - Tweddell, James S.
AU - Elliott, Martin J.
AU - Walters, Hal
AU - Jonas, Richard A.
AU - Prager, Richard L.
AU - Shahian, David M.
AU - Jacobs, Marshall L.
N1 - Funding Information:
The development of this multidomain composite metric is funded through an R01 grant from the National Heart, Lung, and Blood Institute of the National Institutes of Health entitled: “Understanding Quality and Costs in Congenital Heart Surgery” (R01 HL122261). The period of award for this grant is April 1, 2014, through March 31, 2019. The Principal Investigator is Sara K. Pasquali, MD, MHS, and the STS Principal Investigator is Jeffrey P. Jacobs, MD. The grant involves a collaboration with Children’s Hospital Association and will merge clinical data from the STS CHSD with data about utilization of resources from the Pediatric Health Information Systems Database. The specific aims of this R01 grant are (1) aim 1, to develop and validate a composite quality metric in congenital heart surgery; and (2) aim 2, to examine the relationship between our composite measure of quality and cost.
Funding Information:
The International Pediatric and Congenital Cardiac Code (IPCCC) [18, 19] is the system of nomenclature used in the STS CHSD. The IPCCC was created under the leadership of the International Society for Nomenclature of Pediatric and Congenital Heart Disease through the process of creating a bidirectional crossmap of the nomenclature of the International Congenital Heart Surgery Nomenclature and Database Project of the STS and the European Congenital Heart Surgeons Association (ECHSA)/European Association for Cardio-Thoracic Surgery (EACTS) with the European Pediatric Cardiac Code of the Association for European Pediatric Cardiology. (The IPCCC is freely available at http://www.IPCCC.NET .) The IPCCC, and the common minimum database data set created by the International Congenital Heart Surgery Nomenclature and Database Project of STS and ECHSA/EACTS, are now utilized by ECHSA/EACTS CHSD, STS CHSD, and the Japan Congenital Cardiovascular Surgery Database (JCCVSD). The combined dataset of STS CHSD, ECHSA/EACTS CHSD, and JCCVSD contains data from more than 500,000 pediatric and congenital cardiac operations performed beginning in 1998, all coded with the ECHSA/EACTS-STS–derived version of the IPCCC, and all coded with identical data specifications.
Publisher Copyright:
© 2016 The Society of Thoracic Surgeons.
PY - 2016/3/1
Y1 - 2016/3/1
N2 - The Society of Thoracic Surgeons Congenital Heart Surgery Database is the largest congenital and pediatric cardiac surgical clinical data registry in the world. It is the platform for all activities of The Society of Thoracic Surgeons related to the analysis of outcomes and the improvement of quality in this subspecialty. This article summarizes current aggregate national outcomes in congenital and pediatric cardiac surgery and reviews related activities in the areas of quality measurement, performance improvement, and transparency. The reported data about aggregate national outcomes are exemplified by an analysis of 10 benchmark operations performed from January 2011 to December 2014 and documenting overall discharge mortality (interquartile range among programs with more than 9 cases): off-bypass coarctation, 1.0% (0.0% to 0.9%); ventricular septal defect repair, 0.7% (0.0% to 1.1%); tetralogy of Fallot repair, 1.0% (0.0% to 1.7%); complete atrioventricular canal repair, 3.2% (0.0% to 6.5%); arterial switch operation, 2.7% (0.0% to 5.6%); arterial switch operation plus ventricular septal defect, 5.3% (0.0% to 6.7%); Glenn/hemiFontan, 2.1% (0.0% to 3.8%); Fontan operation, 1.4% (0.0% to 2.4%); truncus arteriosus repair, 9.6% (0.0 % to 11.8%); and Norwood procedure, 15.6% (10.0% to 21.4%).
AB - The Society of Thoracic Surgeons Congenital Heart Surgery Database is the largest congenital and pediatric cardiac surgical clinical data registry in the world. It is the platform for all activities of The Society of Thoracic Surgeons related to the analysis of outcomes and the improvement of quality in this subspecialty. This article summarizes current aggregate national outcomes in congenital and pediatric cardiac surgery and reviews related activities in the areas of quality measurement, performance improvement, and transparency. The reported data about aggregate national outcomes are exemplified by an analysis of 10 benchmark operations performed from January 2011 to December 2014 and documenting overall discharge mortality (interquartile range among programs with more than 9 cases): off-bypass coarctation, 1.0% (0.0% to 0.9%); ventricular septal defect repair, 0.7% (0.0% to 1.1%); tetralogy of Fallot repair, 1.0% (0.0% to 1.7%); complete atrioventricular canal repair, 3.2% (0.0% to 6.5%); arterial switch operation, 2.7% (0.0% to 5.6%); arterial switch operation plus ventricular septal defect, 5.3% (0.0% to 6.7%); Glenn/hemiFontan, 2.1% (0.0% to 3.8%); Fontan operation, 1.4% (0.0% to 2.4%); truncus arteriosus repair, 9.6% (0.0 % to 11.8%); and Norwood procedure, 15.6% (10.0% to 21.4%).
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UR - http://www.scopus.com/inward/citedby.url?scp=84959308929&partnerID=8YFLogxK
U2 - 10.1016/j.athoracsur.2016.01.057
DO - 10.1016/j.athoracsur.2016.01.057
M3 - Article
C2 - 26897186
AN - SCOPUS:84959308929
SN - 0003-4975
VL - 101
SP - 850
EP - 862
JO - Annals of Thoracic Surgery
JF - Annals of Thoracic Surgery
IS - 3
ER -