TY - JOUR
T1 - Disorders of sex development
T2 - Summaries of long-term outcome studies
AU - Schober, Justine
AU - Nordenström, Anna
AU - Hoebeke, Piet
AU - Lee, Peter
AU - Houk, Christopher
AU - Looijenga, Leendert
AU - Manzoni, Gianantonio
AU - Reiner, William
AU - Woodhouse, Christopher
PY - 2012/12
Y1 - 2012/12
N2 - Existing outcomes for DSD individuals are inadequate because reports are based upon information collected retrospectively. This paper is presented to review existing data emphasizing information needed to lead to better future care, is based on presentations and discussions at a multi-disciplinary meeting on DSD held in Annecy in 2012, and is not intended to define the present status of management of each of the various DSD diagnoses. Rather it is intended to provide information needed to do studies regarding outcome data from the treatment of children with DSD by providing a summary of recommendations of 'patient-centered' topics that need investigation. The hope is that by being concerned with what is not known, new protocols will be developed for improving both early management and transition to adult life.
AB - Existing outcomes for DSD individuals are inadequate because reports are based upon information collected retrospectively. This paper is presented to review existing data emphasizing information needed to lead to better future care, is based on presentations and discussions at a multi-disciplinary meeting on DSD held in Annecy in 2012, and is not intended to define the present status of management of each of the various DSD diagnoses. Rather it is intended to provide information needed to do studies regarding outcome data from the treatment of children with DSD by providing a summary of recommendations of 'patient-centered' topics that need investigation. The hope is that by being concerned with what is not known, new protocols will be developed for improving both early management and transition to adult life.
KW - Disorders of sexual development
UR - http://www.scopus.com/inward/record.url?scp=84870544702&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84870544702&partnerID=8YFLogxK
U2 - 10.1016/j.jpurol.2012.08.005
DO - 10.1016/j.jpurol.2012.08.005
M3 - Article
C2 - 23182771
AN - SCOPUS:84870544702
SN - 1477-5131
VL - 8
SP - 616
EP - 623
JO - Journal of Pediatric Urology
JF - Journal of Pediatric Urology
IS - 6
ER -